[article] Title : | The role of health advocacy in transitions from pediatric to care children with special health care : Need bridging families, provider and community services | Material Type: | printed text | Authors: | Okumura, Megumi J., Author ; Saunders, Mara, Author ; Rehm, Roberta S., Author | Publication Date: | 2015 | Article on page: | p. 714-723 | Languages : | English (eng) Original Language : English (eng) | in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 714-723Abstract: | Background Youth and young adults with special healthcare needs oASHCN) experience challenges during transition from pediatric to adult care. Prior studies have not examined how community and healthcare resources can work together to assist YASHCN in transitioning from child-focused care and services to adult-oriented providers. objective: The aim of this study was todevelop a theoretical understanding of how family, healthcare providers and community supports can assist YASHCN during the transition from pediatric to adulthealthcare and services Design/Methods: We conducted 41 semi-structured interviews with YASHCN aged 16-25. their family members and healthcare and community providers. We focused our interviews on support mechanisms, both ithin the traditional healthcare system, and those available in the community. Using grounded theory methods, we performed a multi-step analysis process. Results: The theoretical code"Transition Advocacy" was from the data. This theoretical perspective arose from three major categories, which were developed in the analysis: "Fighting for healthcare Obtaining resources and"Getting ready to transition". Transition Advocacy consists of the presence of, or need for, a healthcare"advocate" who did or can assist the YASHCN with the healthcare transition, particularly to navigate complex health or community services. The advocate role was performed by family members, healthcare or agency professionals, or sometimes the YASHCN themselves. If advocates were identified, youth were more likely to obtain needed services. Conclusions: Parents health providers, and community agencies are potentially well-poised to assist transitioning Y Efforts to encourage development of strong advocacy skills will facilitate better transitions for YASHCN 2015 Elsevier Inc. All rights reserved. | Link for e-copy: | http://www.journals.elsevier.com/journal-of-pediatric-nursing/ | Record link: | http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25280 |
[article] The role of health advocacy in transitions from pediatric to care children with special health care : Need bridging families, provider and community services [printed text] / Okumura, Megumi J., Author ; Saunders, Mara, Author ; Rehm, Roberta S., Author . - 2015 . - p. 714-723. Languages : English ( eng) Original Language : English ( eng) in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 714-723Abstract: | Background Youth and young adults with special healthcare needs oASHCN) experience challenges during transition from pediatric to adult care. Prior studies have not examined how community and healthcare resources can work together to assist YASHCN in transitioning from child-focused care and services to adult-oriented providers. objective: The aim of this study was todevelop a theoretical understanding of how family, healthcare providers and community supports can assist YASHCN during the transition from pediatric to adulthealthcare and services Design/Methods: We conducted 41 semi-structured interviews with YASHCN aged 16-25. their family members and healthcare and community providers. We focused our interviews on support mechanisms, both ithin the traditional healthcare system, and those available in the community. Using grounded theory methods, we performed a multi-step analysis process. Results: The theoretical code"Transition Advocacy" was from the data. This theoretical perspective arose from three major categories, which were developed in the analysis: "Fighting for healthcare Obtaining resources and"Getting ready to transition". Transition Advocacy consists of the presence of, or need for, a healthcare"advocate" who did or can assist the YASHCN with the healthcare transition, particularly to navigate complex health or community services. The advocate role was performed by family members, healthcare or agency professionals, or sometimes the YASHCN themselves. If advocates were identified, youth were more likely to obtain needed services. Conclusions: Parents health providers, and community agencies are potentially well-poised to assist transitioning Y Efforts to encourage development of strong advocacy skills will facilitate better transitions for YASHCN 2015 Elsevier Inc. All rights reserved. | Link for e-copy: | http://www.journals.elsevier.com/journal-of-pediatric-nursing/ | Record link: | http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25280 |
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