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Add the result to your basketTransition from child to adult care - 'it's not a one-off event' / Aldiss, Susie in Journal of Pediatric Nursing, Vol.30 No.5 (Sep-Oct) 2015 ([11/19/2015])
Title : Transition from child to adult care - 'it's not a one-off event' : Development of benchmarks to improve the experience Material Type: printed text Authors: Aldiss, Susie, Author ; Ellis, Judith, Author ; Cass, Hilary, Author Publication Date: 2015 Article on page: p. 638-647 Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 638-647Abstract: The transition from child to adult services is a crucial time in the health of young people who may potentially fall into a poorly managed"care A multi-site, multi-staged study was undertaken to the of programme of care for young people. Through a of mapping, which involved drawing on primary and secondary data, clinical practice-benchmark tool was developed. Benchmarks are a health care quality performance measurement provide clinical teams with standards that services can measure themselves against to see how they are doing. They are used in a comparing and sharing activity, using a structured and systematic approach, to share best practice. They offer a mechanism to look at processes, and provide an opportunity to analyse skills attitudes, which may be the hidden narrative in benchmarking. This paper describes steps in the development of benchmarks for transition to adult care, often associated with low patient and family satisfaction. Qualitative data were collected through focus groups, workshops and interviews from 13 young people with long-term health conditions, 11 parents, 36 professionals and 21 experts leading on transition within the United Kingdom. Transcripts were analysed using qualitative content analysi For young people and their parents carers to experience timely and effective transition, eight factors and their associated indicators of best practice were developed from the primary and secondary data and refined through an iterative process. We recommend their use to clinical teams to inform system level strategies as well as evaluation programmes. 2015 Elsevier Inc. All rights reserved. Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25272 [article] Transition from child to adult care - 'it's not a one-off event' : Development of benchmarks to improve the experience [printed text] / Aldiss, Susie, Author ; Ellis, Judith, Author ; Cass, Hilary, Author . - 2015 . - p. 638-647.
Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 638-647Abstract: The transition from child to adult services is a crucial time in the health of young people who may potentially fall into a poorly managed"care A multi-site, multi-staged study was undertaken to the of programme of care for young people. Through a of mapping, which involved drawing on primary and secondary data, clinical practice-benchmark tool was developed. Benchmarks are a health care quality performance measurement provide clinical teams with standards that services can measure themselves against to see how they are doing. They are used in a comparing and sharing activity, using a structured and systematic approach, to share best practice. They offer a mechanism to look at processes, and provide an opportunity to analyse skills attitudes, which may be the hidden narrative in benchmarking. This paper describes steps in the development of benchmarks for transition to adult care, often associated with low patient and family satisfaction. Qualitative data were collected through focus groups, workshops and interviews from 13 young people with long-term health conditions, 11 parents, 36 professionals and 21 experts leading on transition within the United Kingdom. Transcripts were analysed using qualitative content analysi For young people and their parents carers to experience timely and effective transition, eight factors and their associated indicators of best practice were developed from the primary and secondary data and refined through an iterative process. We recommend their use to clinical teams to inform system level strategies as well as evaluation programmes. 2015 Elsevier Inc. All rights reserved. Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25272
Title : Moving the journey towards independence : adolescents transittioning to successful diabetes self-management Material Type: printed text Authors: Babler, Elizabeth, Author ; Strickland, Carolyn June, Author Publication Date: 2015 Article on page: p. 650-660 Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 650-660Abstract: Purpose To gain a greater understanding of adolescent's experiences living with Type 1 diabetes(TIDM) and create a theoretical paradigm Fifteen in-depth interviews were Methods: Grounded theory as described by Glaser was used interactionism is the theoretical conducted with adolescent's ages 11-15 with TIDM, Symbolic simultaneously mework for grounded theory. Data were collected; transcribed, coded, and analyzed using constant comparative analysis and findings were grounded in the words of participants. as the A theoretical model was created with the concept of"norma Normalizing was defined the ability to integrate diabetes into one's daily life to make diabetes part of me. Phase four of the model, and focus of this was"Moving the Journey towards Independence" and included: 1)taking over care, 2) manuscript realizing diabetes is hard. The major task for adolescents in experiencing conflict with parents, and 3) task for this phas this phase was separating from parents to independently manage diabetes The normalizing care and increased was: "taking on the burden of care". Adolescents described challenges with independent that diabetes parental conflict including: fearing needles, forgetting insulin, feeling embarrassed and believing work along as a burden in their life. juggling the multiple responsibilities of home, school and with managing a chronic illness during adolescence is challenging. for This model advances Conclusions: Transitioning to diabetes self-management is a challenge adolescents. presented that understanding of the moving processes in adolescents transitioning, additionally, hypotheses are may be used for developing interventions to promote success in management O 2015 Elsevier Inc. All rights reserved. Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25273 [article] Moving the journey towards independence : adolescents transittioning to successful diabetes self-management [printed text] / Babler, Elizabeth, Author ; Strickland, Carolyn June, Author . - 2015 . - p. 650-660.
Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 650-660Abstract: Purpose To gain a greater understanding of adolescent's experiences living with Type 1 diabetes(TIDM) and create a theoretical paradigm Fifteen in-depth interviews were Methods: Grounded theory as described by Glaser was used interactionism is the theoretical conducted with adolescent's ages 11-15 with TIDM, Symbolic simultaneously mework for grounded theory. Data were collected; transcribed, coded, and analyzed using constant comparative analysis and findings were grounded in the words of participants. as the A theoretical model was created with the concept of"norma Normalizing was defined the ability to integrate diabetes into one's daily life to make diabetes part of me. Phase four of the model, and focus of this was"Moving the Journey towards Independence" and included: 1)taking over care, 2) manuscript realizing diabetes is hard. The major task for adolescents in experiencing conflict with parents, and 3) task for this phas this phase was separating from parents to independently manage diabetes The normalizing care and increased was: "taking on the burden of care". Adolescents described challenges with independent that diabetes parental conflict including: fearing needles, forgetting insulin, feeling embarrassed and believing work along as a burden in their life. juggling the multiple responsibilities of home, school and with managing a chronic illness during adolescence is challenging. for This model advances Conclusions: Transitioning to diabetes self-management is a challenge adolescents. presented that understanding of the moving processes in adolescents transitioning, additionally, hypotheses are may be used for developing interventions to promote success in management O 2015 Elsevier Inc. All rights reserved. Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25273
Title : Implementation of a Transdisciplinary team for the transition support of medically and socially complex youth Material Type: printed text Authors: Ciccarelli, Mary R., Author ; Gladstone, Erin B., Author ; Richardson, Eprise A.J. Armstrong, Author Publication Date: 2015 Article on page: p. 661-667 Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 661-667Abstract: Purpose This article reports the ongoing work of a statewide transition support program which serves youth ages 11 to 22 with medically complex conditions and socially complex lives Methods: Seven years of transition support services have led to program evolution demonstrated via a descriptive summary of the patients along with both families' and primary care providers' responses to satisfaction surveys. An illustrative case is used to highlight the types of expertise needed in specialized transition service delivery for patients with significant complexity. The team's analysis of their transdisciplinary work processes further explains the work Results: Nearly three hundred youth with complex needs are served yearly. Families and primary care providers express high satisfaction with the support of the services. The case example shows the broad array of transition-specific services engaged beyond the usual skill set of pediatric or adult care coordination teams. Transdisciplinary team uses skills in collaboration support, learning, and compromise within a trusting and respectful environment. They describe the shared responsibility and continuous learning of the whole team Conclusions: Youth with complex medical conditions and complex social situations are at higher risk for problems during transition. Serving this population with a transdisciplinary model is time consuming and requires advanced expertise but, with those investments, we can meet the expectations of the youth their families and primary care providers. Successful transdisciplinary teamwork requires sustained and focused investment. Further work is needed to describe the complexity of this service delivery along with distinct transition outcomes and costs comparisons o 2015 Elsevier Inc. All rights reserved. Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25274 [article] Implementation of a Transdisciplinary team for the transition support of medically and socially complex youth [printed text] / Ciccarelli, Mary R., Author ; Gladstone, Erin B., Author ; Richardson, Eprise A.J. Armstrong, Author . - 2015 . - p. 661-667.
Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 661-667Abstract: Purpose This article reports the ongoing work of a statewide transition support program which serves youth ages 11 to 22 with medically complex conditions and socially complex lives Methods: Seven years of transition support services have led to program evolution demonstrated via a descriptive summary of the patients along with both families' and primary care providers' responses to satisfaction surveys. An illustrative case is used to highlight the types of expertise needed in specialized transition service delivery for patients with significant complexity. The team's analysis of their transdisciplinary work processes further explains the work Results: Nearly three hundred youth with complex needs are served yearly. Families and primary care providers express high satisfaction with the support of the services. The case example shows the broad array of transition-specific services engaged beyond the usual skill set of pediatric or adult care coordination teams. Transdisciplinary team uses skills in collaboration support, learning, and compromise within a trusting and respectful environment. They describe the shared responsibility and continuous learning of the whole team Conclusions: Youth with complex medical conditions and complex social situations are at higher risk for problems during transition. Serving this population with a transdisciplinary model is time consuming and requires advanced expertise but, with those investments, we can meet the expectations of the youth their families and primary care providers. Successful transdisciplinary teamwork requires sustained and focused investment. Further work is needed to describe the complexity of this service delivery along with distinct transition outcomes and costs comparisons o 2015 Elsevier Inc. All rights reserved. Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25274
Title : Self-management and transition readiness assessment : Concurrent, predictive and discriminant validation of the star questionnaire Material Type: printed text Authors: Cohen, Sarah E., Author ; Hooper, Stephen R., Author ; Javalkar, Karina, Author Publication Date: 2015 Article on page: p. 668- 676 Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 668- 676Abstract: Introduction The STAR Questionnaire was designed with patient and provider input, to measure self- management and transition skills in adolescents and young adults(AYA) with chronic health conditions. With proven reliability and an empirically-based factor structure, the selfreport STAR, Questionnaire requires further validation to demonstrate its clinical and research utility. In this study we examine the concurrent, predictive, and discriminant validity of the STAR, Questionnaire. Methods: To examine concurrent validity, the STARx Questionnaire was compared to two other published transition readiness tools. Predictive validity was examined using linear regressions between the STARx Total Score and literacy, medication adherence, quality of life, and health services use. Discriminant validity was examined by comparing the performance of three chronic illness conditions on the STAR, Total Score and associated subscales Results: The STARx Questionnaire and its subscales positively correlated with the scores for both ransition readiness tools reflecting strong concurrent validity. The STAR Questionnaire also correlated positively with the literacy, self-efficacy, and adherence measures indicating strong predictive validity however, it did not correlate with either quality of life or health care utilization. The performance o AYA across three different clinical conditions was not significant, indicating the clinical utility of this CT tool for a variety of chronic health conditions. Conclusion: The strong validity of the STARx Questionnaire, in tandem with its strong reliability, indicate dequate psychometric properties for this generic self-report measure. These strong psychometric properties shoul ontribute to the STARx being a viable measure of health care transition for both research and clinical purposes 2015 Elsevier Inc. All rights reserved. Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25275 [article] Self-management and transition readiness assessment : Concurrent, predictive and discriminant validation of the star questionnaire [printed text] / Cohen, Sarah E., Author ; Hooper, Stephen R., Author ; Javalkar, Karina, Author . - 2015 . - p. 668- 676.
Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 668- 676Abstract: Introduction The STAR Questionnaire was designed with patient and provider input, to measure self- management and transition skills in adolescents and young adults(AYA) with chronic health conditions. With proven reliability and an empirically-based factor structure, the selfreport STAR, Questionnaire requires further validation to demonstrate its clinical and research utility. In this study we examine the concurrent, predictive, and discriminant validity of the STAR, Questionnaire. Methods: To examine concurrent validity, the STARx Questionnaire was compared to two other published transition readiness tools. Predictive validity was examined using linear regressions between the STARx Total Score and literacy, medication adherence, quality of life, and health services use. Discriminant validity was examined by comparing the performance of three chronic illness conditions on the STAR, Total Score and associated subscales Results: The STARx Questionnaire and its subscales positively correlated with the scores for both ransition readiness tools reflecting strong concurrent validity. The STAR Questionnaire also correlated positively with the literacy, self-efficacy, and adherence measures indicating strong predictive validity however, it did not correlate with either quality of life or health care utilization. The performance o AYA across three different clinical conditions was not significant, indicating the clinical utility of this CT tool for a variety of chronic health conditions. Conclusion: The strong validity of the STARx Questionnaire, in tandem with its strong reliability, indicate dequate psychometric properties for this generic self-report measure. These strong psychometric properties shoul ontribute to the STARx being a viable measure of health care transition for both research and clinical purposes 2015 Elsevier Inc. All rights reserved. Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25275
Title : Multidisciplinary support for healthcare transitioning across an urban healthcare network Material Type: printed text Authors: Davidson, Lynn F., Author ; LCSW-R, Maya Doyle, Author ; Silver, Ellen J., Author Publication Date: 2015 Article on page: p. 677-683 Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 677-683Abstract: Background A successful transition from pediatric to adult oriented health care is a vital process in maintaining a patient-centered medical home for youth with special health care needs(YSHCNs). We assessed practices of providers who transition YsCHNs to adult-oriented medical care in a large urban academic healthcare network generalist and subspecialist Methods: A web-based survey was distributed to 376 adapted from the pediatric providers. Survey assessed provider utilization of 11 recent transitioning literature. 2002 consensus statement on Health Care Transitions for YSHCNs, and Compliance score(CS11) was calculated as a sum of steps completed. Additional items assessed knowledge of transitioning literature and respondent demographics Results: Survey achieved a 28% response rate(n 105), of whom 84 reported assisting transitioning YsHCNs. Only 16.7% of these respondents were compliant with 7 or more of the 11 Essential Steps. who identified social work or nursing were more likely to have Csil scores 27 compared to those without and were more likely to be compliant with specific step transitioning steps for Conclusion: We found limited and incomplete utili of recommended support from social Ns by pediatric providers within a large urban healthcare network. Access to work and nursing was associated with greater utilization of specific recommended steps, with more optimal compliance. Further research needs to assess the transitioning practice of all members of the multidisciplinary team and whether operationalizing healthcare transition for YSHCNs as a multidisciplinary activity impacts the transitioning process and patient out c 2015 Elsevier Inc. All rights reserved. Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25276 [article] Multidisciplinary support for healthcare transitioning across an urban healthcare network [printed text] / Davidson, Lynn F., Author ; LCSW-R, Maya Doyle, Author ; Silver, Ellen J., Author . - 2015 . - p. 677-683.
Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 677-683Abstract: Background A successful transition from pediatric to adult oriented health care is a vital process in maintaining a patient-centered medical home for youth with special health care needs(YSHCNs). We assessed practices of providers who transition YsCHNs to adult-oriented medical care in a large urban academic healthcare network generalist and subspecialist Methods: A web-based survey was distributed to 376 adapted from the pediatric providers. Survey assessed provider utilization of 11 recent transitioning literature. 2002 consensus statement on Health Care Transitions for YSHCNs, and Compliance score(CS11) was calculated as a sum of steps completed. Additional items assessed knowledge of transitioning literature and respondent demographics Results: Survey achieved a 28% response rate(n 105), of whom 84 reported assisting transitioning YsHCNs. Only 16.7% of these respondents were compliant with 7 or more of the 11 Essential Steps. who identified social work or nursing were more likely to have Csil scores 27 compared to those without and were more likely to be compliant with specific step transitioning steps for Conclusion: We found limited and incomplete utili of recommended support from social Ns by pediatric providers within a large urban healthcare network. Access to work and nursing was associated with greater utilization of specific recommended steps, with more optimal compliance. Further research needs to assess the transitioning practice of all members of the multidisciplinary team and whether operationalizing healthcare transition for YSHCNs as a multidisciplinary activity impacts the transitioning process and patient out c 2015 Elsevier Inc. All rights reserved. Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25276
Title : Congruence of transition perspectives between adolescents with perinatally-acquired HIV and their guardians : an exploratory qualitative study Material Type: printed text Authors: Fair, Cynthia D., Author ; Goldstein, Becca, Author ; Dizney, Rachel, Author Publication Date: 2015 Article on page: p. 684-690 Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 684-690Abstract: Youth with perinatally-acquired HIV infection(PHIV routinely survive into adulthood requiring transition to adult care. Research underscores the importance of assessing transition perspective congruence between adolescents and guardians, Interviews focused on transition decisions were conducted with 18 adolescents with PHIV and their guardians recruited from a southeastern US pediatric infectious disease clinic. Transcribed responses were coded as congruent or divergent Adolescents and guardians held congruent views that the transition process had not started. Fewer dyads agreed upon the level of adolescent and guardian involvement in transition decisions. Providers should assess congruence of adolescent and guardian perspectives regarding transition-related decisions O 2015 Elsevier Inc. All rights reserved. Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25277 [article] Congruence of transition perspectives between adolescents with perinatally-acquired HIV and their guardians : an exploratory qualitative study [printed text] / Fair, Cynthia D., Author ; Goldstein, Becca, Author ; Dizney, Rachel, Author . - 2015 . - p. 684-690.
Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 684-690Abstract: Youth with perinatally-acquired HIV infection(PHIV routinely survive into adulthood requiring transition to adult care. Research underscores the importance of assessing transition perspective congruence between adolescents and guardians, Interviews focused on transition decisions were conducted with 18 adolescents with PHIV and their guardians recruited from a southeastern US pediatric infectious disease clinic. Transcribed responses were coded as congruent or divergent Adolescents and guardians held congruent views that the transition process had not started. Fewer dyads agreed upon the level of adolescent and guardian involvement in transition decisions. Providers should assess congruence of adolescent and guardian perspectives regarding transition-related decisions O 2015 Elsevier Inc. All rights reserved. Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25277
Title : Self-management and transition readiness assessment : Development, reliability, and factor structure of STAR questionnaire Material Type: printed text Authors: Ferris, M., Author ; Cohen, S., Author ; Haberman, C., Author Publication Date: 2015 Article on page: p. 961-699 Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 961-699Abstract: Introduction: The Self-Management and Transition to Adulthood with Rx Treatment(STAR, Questionnaire was developed to collect information on self management and health care transition(HCT skills,via self-report, in a broad population of adolescents and young adults(AYAs) with chronic conditions. Methods: Over several iterations, the STAR, questionnaire was created with AYA, family, and health provider input. The development and pilot testing of the STAR Questionnaire took place with the assistance of 1219 AYAs with different chronic health conditions, in multiple institutions and settings over three phases: item development, pilot testing, reliability and factor structuring. Results: The three development phases resulted in a final version of the STARx Questionnaire. The exploratory factor analysis of the third version of the 18-item STAR, identified six factors that accounted for about 65% of the Adult health responsibilities, and Resource utilization. Reliability estimates revealed good intemal consistency and temporal stability, with the alpha coefficient for the overall scale being.80. The STAR, was developmentally sensitive, with older patients scoring significantly higher on nearly every factor than younger patients. Conclusion: The STARx Questionnaire is a reliable, self-report tool with adequate internal consistency, temporal stability, and a strong, multidimensional factor structure. It provides another assessment strategy to measure self-management and transition skills in AYAs with chronic conditions. 2015 Elsevier Inc. All rights reserved. Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25278 [article] Self-management and transition readiness assessment : Development, reliability, and factor structure of STAR questionnaire [printed text] / Ferris, M., Author ; Cohen, S., Author ; Haberman, C., Author . - 2015 . - p. 961-699.
Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 961-699Abstract: Introduction: The Self-Management and Transition to Adulthood with Rx Treatment(STAR, Questionnaire was developed to collect information on self management and health care transition(HCT skills,via self-report, in a broad population of adolescents and young adults(AYAs) with chronic conditions. Methods: Over several iterations, the STAR, questionnaire was created with AYA, family, and health provider input. The development and pilot testing of the STAR Questionnaire took place with the assistance of 1219 AYAs with different chronic health conditions, in multiple institutions and settings over three phases: item development, pilot testing, reliability and factor structuring. Results: The three development phases resulted in a final version of the STARx Questionnaire. The exploratory factor analysis of the third version of the 18-item STAR, identified six factors that accounted for about 65% of the Adult health responsibilities, and Resource utilization. Reliability estimates revealed good intemal consistency and temporal stability, with the alpha coefficient for the overall scale being.80. The STAR, was developmentally sensitive, with older patients scoring significantly higher on nearly every factor than younger patients. Conclusion: The STARx Questionnaire is a reliable, self-report tool with adequate internal consistency, temporal stability, and a strong, multidimensional factor structure. It provides another assessment strategy to measure self-management and transition skills in AYAs with chronic conditions. 2015 Elsevier Inc. All rights reserved. Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25278
Title : Incorporating the six element of health care transition into a medicaid care plan : lessons learned from a pilot project Material Type: printed text Authors: McManus, Margaret, Author ; White, Patience, Author ; Pirtle, Robin, Author Publication Date: 2015 Article on page: p. 700-713 Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 700-713Abstract: This pediatric to adult health care transition pilot project describes the process and results of incorporating the"Six Core Elements of Health Care Transition(2.0)" into a Medicaid managed care plan with a group of 35 18-23 year olds who have chronic mental health, developmental, and complex medical conditions. The pilot project demonstrated an effective approach for customizing and delivering recommended transition services. At the start of the 18-month project, the Medicaid plan was at the basic level(1) of transition implementation of the Six Core Elements with no transition policy, member transition readiness assessment results, health care transition plans of care, updated medical summaries, transfer package for the adult-focused provider, and assurance of transfer completion and consumer feedback. At the conclusion of the pilot project, the plan scored at level 3 on each core element. The primary reason for not scoring at the highest level(4) was because the transition elements have not been incorporated into services for all enrollees within the plan. Future efforts in managed care will benefit from starting the transition process much earlier(ages 12-14), expanding the role of nurse care managers and participating pediatric and adult-focused clinicians in transition, and offering payment incentives to clinicians to implement the Six Core Elements of Health Care Transition. c 2015 Elsevier Inc. All rights reserved. Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25279 [article] Incorporating the six element of health care transition into a medicaid care plan : lessons learned from a pilot project [printed text] / McManus, Margaret, Author ; White, Patience, Author ; Pirtle, Robin, Author . - 2015 . - p. 700-713.
Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 700-713Abstract: This pediatric to adult health care transition pilot project describes the process and results of incorporating the"Six Core Elements of Health Care Transition(2.0)" into a Medicaid managed care plan with a group of 35 18-23 year olds who have chronic mental health, developmental, and complex medical conditions. The pilot project demonstrated an effective approach for customizing and delivering recommended transition services. At the start of the 18-month project, the Medicaid plan was at the basic level(1) of transition implementation of the Six Core Elements with no transition policy, member transition readiness assessment results, health care transition plans of care, updated medical summaries, transfer package for the adult-focused provider, and assurance of transfer completion and consumer feedback. At the conclusion of the pilot project, the plan scored at level 3 on each core element. The primary reason for not scoring at the highest level(4) was because the transition elements have not been incorporated into services for all enrollees within the plan. Future efforts in managed care will benefit from starting the transition process much earlier(ages 12-14), expanding the role of nurse care managers and participating pediatric and adult-focused clinicians in transition, and offering payment incentives to clinicians to implement the Six Core Elements of Health Care Transition. c 2015 Elsevier Inc. All rights reserved. Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25279
Title : The role of health advocacy in transitions from pediatric to care children with special health care : Need bridging families, provider and community services Material Type: printed text Authors: Okumura, Megumi J., Author ; Saunders, Mara, Author ; Rehm, Roberta S., Author Publication Date: 2015 Article on page: p. 714-723 Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 714-723Abstract: Background Youth and young adults with special healthcare needs oASHCN) experience challenges during transition from pediatric to adult care. Prior studies have not examined how community and healthcare resources can work together to assist YASHCN in transitioning from child-focused care and services to adult-oriented providers. objective: The aim of this study was todevelop a theoretical understanding of how family, healthcare providers and community supports can assist YASHCN during the transition from pediatric to adulthealthcare and services Design/Methods: We conducted 41 semi-structured interviews with YASHCN aged 16-25. their family members and healthcare and community providers. We focused our interviews on support mechanisms, both ithin the traditional healthcare system, and those available in the community. Using grounded theory methods, we performed a multi-step analysis process. Results: The theoretical code"Transition Advocacy" was from the data. This theoretical perspective arose from three major categories, which were developed in the analysis: "Fighting for healthcare Obtaining resources and"Getting ready to transition". Transition Advocacy consists of the presence of, or need for, a healthcare"advocate" who did or can assist the YASHCN with the healthcare transition, particularly to navigate complex health or community services. The advocate role was performed by family members, healthcare or agency professionals, or sometimes the YASHCN themselves. If advocates were identified, youth were more likely to obtain needed services. Conclusions: Parents health providers, and community agencies are potentially well-poised to assist transitioning Y Efforts to encourage development of strong advocacy skills will facilitate better transitions for YASHCN 2015 Elsevier Inc. All rights reserved. Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25280 [article] The role of health advocacy in transitions from pediatric to care children with special health care : Need bridging families, provider and community services [printed text] / Okumura, Megumi J., Author ; Saunders, Mara, Author ; Rehm, Roberta S., Author . - 2015 . - p. 714-723.
Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 714-723Abstract: Background Youth and young adults with special healthcare needs oASHCN) experience challenges during transition from pediatric to adult care. Prior studies have not examined how community and healthcare resources can work together to assist YASHCN in transitioning from child-focused care and services to adult-oriented providers. objective: The aim of this study was todevelop a theoretical understanding of how family, healthcare providers and community supports can assist YASHCN during the transition from pediatric to adulthealthcare and services Design/Methods: We conducted 41 semi-structured interviews with YASHCN aged 16-25. their family members and healthcare and community providers. We focused our interviews on support mechanisms, both ithin the traditional healthcare system, and those available in the community. Using grounded theory methods, we performed a multi-step analysis process. Results: The theoretical code"Transition Advocacy" was from the data. This theoretical perspective arose from three major categories, which were developed in the analysis: "Fighting for healthcare Obtaining resources and"Getting ready to transition". Transition Advocacy consists of the presence of, or need for, a healthcare"advocate" who did or can assist the YASHCN with the healthcare transition, particularly to navigate complex health or community services. The advocate role was performed by family members, healthcare or agency professionals, or sometimes the YASHCN themselves. If advocates were identified, youth were more likely to obtain needed services. Conclusions: Parents health providers, and community agencies are potentially well-poised to assist transitioning Y Efforts to encourage development of strong advocacy skills will facilitate better transitions for YASHCN 2015 Elsevier Inc. All rights reserved. Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25280
Title : Development of a primary care-based clinic to support adults with a history of childhood cancer : The tactic clinic Material Type: printed text Authors: Overholser, Linda S., Author ; Moos, Kerry M., Author ; Kilbourn, Kristin, Author Publication Date: 2015 Article on page: p. 724-731 Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 724-731Abstract: Purpose Describe the development and multidisciplinary clinic to support evolution of a primary-care-based, the ongoing care of adult survivors of childhood cancer is Methods: A consultative clinic for adult survivors of cancer has been developed that located in an adult, academic internal medicine setting and is based on a long-term follow-up clinic model available at Children's Hospital Colorado Results: The clinic opened in July 20 One hundred thirty-five patients have been seen as of April 2014 Referrals and clinic capacity have gradually increased over time, and a template has been developed in the electronic medical record to help facilitate completion of individualized care plan letters. Conclusions: A primary care-based, multidisciplinary consultative clinic for adults with a history of childhood cancer survivor is feasible and actively engages adult primary care resources to provide risk-based care for long term pediatric cancer survivors. This model of care planning can help support adult survivors ofpediatric cancer and their primary care providers in non-academic, community settings as well O 2015 Elsevier Inc. All rights reserved Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25281 [article] Development of a primary care-based clinic to support adults with a history of childhood cancer : The tactic clinic [printed text] / Overholser, Linda S., Author ; Moos, Kerry M., Author ; Kilbourn, Kristin, Author . - 2015 . - p. 724-731.
Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 724-731Abstract: Purpose Describe the development and multidisciplinary clinic to support evolution of a primary-care-based, the ongoing care of adult survivors of childhood cancer is Methods: A consultative clinic for adult survivors of cancer has been developed that located in an adult, academic internal medicine setting and is based on a long-term follow-up clinic model available at Children's Hospital Colorado Results: The clinic opened in July 20 One hundred thirty-five patients have been seen as of April 2014 Referrals and clinic capacity have gradually increased over time, and a template has been developed in the electronic medical record to help facilitate completion of individualized care plan letters. Conclusions: A primary care-based, multidisciplinary consultative clinic for adults with a history of childhood cancer survivor is feasible and actively engages adult primary care resources to provide risk-based care for long term pediatric cancer survivors. This model of care planning can help support adult survivors ofpediatric cancer and their primary care providers in non-academic, community settings as well O 2015 Elsevier Inc. All rights reserved Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25281
Title : Uncharted territory : systematic review of providers' roles' and views pertaining to health care transition Material Type: printed text Authors: Nehring, Wendy M., Author ; Betz, Cecily L., Author ; Lobo, Marie L., Author Publication Date: 2015 Article on page: p. 732-747 Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 732-747Abstract: Background: Health care transition(HCT for adolescents and emerging adults(AEA) with special health care needs is an emerging field of interdisciplinary field of practice and research that is based upon an intergenerational approach involving care coordination between pediatric and adult systems of health care. Informed understanding of the state of the HCT science pertaining to this group of providers is needed in order to develop and implement service programs that will meet the comprehensive needs of AEA with special health care needs. Methods: The authors conducted a systematic review of the literature on the transition from child to adult care for adolescents and emerging adults(AEA) with special health care needs from 2004 to 2013 Fifty-five articles were selected for this review. An adaptation of the PRISMA guidelines was applied because all studies in this review used descriptive designs Results: Findings revealed lack of evidence due to the limitations of the research designs and methodology of the studies included in this systematic review. Study findings were categorized the following four types: adult provider competency, provider perspectives, provider attitudes, and HCT service models. The discipline of medicine was predominant; interdisciplinary frameworks based upon integrated care were not reported. Few studies included samples of adult providers Conclusions: Empirical-based data are lacking pertaining to the role of providers involved in this specialty area of practice. Evidence is hampered by the limitations of the lack of rigorous research designs and methodology 2015 Elsevier Inc. All rights reserved. Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25282 [article] Uncharted territory : systematic review of providers' roles' and views pertaining to health care transition [printed text] / Nehring, Wendy M., Author ; Betz, Cecily L., Author ; Lobo, Marie L., Author . - 2015 . - p. 732-747.
Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 732-747Abstract: Background: Health care transition(HCT for adolescents and emerging adults(AEA) with special health care needs is an emerging field of interdisciplinary field of practice and research that is based upon an intergenerational approach involving care coordination between pediatric and adult systems of health care. Informed understanding of the state of the HCT science pertaining to this group of providers is needed in order to develop and implement service programs that will meet the comprehensive needs of AEA with special health care needs. Methods: The authors conducted a systematic review of the literature on the transition from child to adult care for adolescents and emerging adults(AEA) with special health care needs from 2004 to 2013 Fifty-five articles were selected for this review. An adaptation of the PRISMA guidelines was applied because all studies in this review used descriptive designs Results: Findings revealed lack of evidence due to the limitations of the research designs and methodology of the studies included in this systematic review. Study findings were categorized the following four types: adult provider competency, provider perspectives, provider attitudes, and HCT service models. The discipline of medicine was predominant; interdisciplinary frameworks based upon integrated care were not reported. Few studies included samples of adult providers Conclusions: Empirical-based data are lacking pertaining to the role of providers involved in this specialty area of practice. Evidence is hampered by the limitations of the lack of rigorous research designs and methodology 2015 Elsevier Inc. All rights reserved. Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25282
Title : Family perspectives of components of a diabetes transition program Material Type: printed text Authors: Polfuss, Michele, Author ; Babler, Elizabeth, Author ; Bush, Loretta L., Author Publication Date: 2015 Article on page: p. 748-756 Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 748-756Abstract: Purpose: To evaluate the perspectives of adolescent/parent dyads about a diabetes program on: 1 perception of knowledge, self-efficacy, importance of transition behaviors and ability to self-manage diabetes, (2) the congruency of knowledge and skills important for transition, (3) program specifics families determined helpful for transition, and(4) the relationship of adolescents' self-efficacy to se management behaviors(SMB) and Hemoglobin Aic(HbAic) Methods: The individual and family selfmanagement theory guided this prospective cross-sectional study. Sample included 45 dyads from a pediatric diabetes program. Dyads independently complete questionnaires related to knowledge, self-efficacy, the importance of specific diabetes knowledge and skills, and behaviors helpful for self-management and transition readiness. Analysis included frequencies, correlations, Cronbach's alpha, and paired t-tests Results: Knowledge was high and self-efficacy even higher in the dyads. However, they did not agree on behaviors important for transition such as, knowing what the HbAic should be, accurately counting carbohydrates, how to check ketones, how alcohol and drugs affect diabetes, or consistent documentation of blood sugar, carbohydrates and insulin doses. Adolescents indicated talking with providers and program materials as helpful, but attending regular visits and talking with parents as most helpful for transition. Adolescent and parent assessment of adolescent self-efficacy and self- management behaviors were strongly correlated. Family dyad's perceptions of adolescent self-efficacy were similar but not related to HbAuc Conclusion: A diabetes transition program has the opportunity to impact an adolescent's ability to self manage their chronic illness by increasing self-efficacy and recognizing the strengths of the parent adolescent and provider in the transition process. 2015 Elsevier Inc. All rights reserved. Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25283 [article] Family perspectives of components of a diabetes transition program [printed text] / Polfuss, Michele, Author ; Babler, Elizabeth, Author ; Bush, Loretta L., Author . - 2015 . - p. 748-756.
Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 748-756Abstract: Purpose: To evaluate the perspectives of adolescent/parent dyads about a diabetes program on: 1 perception of knowledge, self-efficacy, importance of transition behaviors and ability to self-manage diabetes, (2) the congruency of knowledge and skills important for transition, (3) program specifics families determined helpful for transition, and(4) the relationship of adolescents' self-efficacy to se management behaviors(SMB) and Hemoglobin Aic(HbAic) Methods: The individual and family selfmanagement theory guided this prospective cross-sectional study. Sample included 45 dyads from a pediatric diabetes program. Dyads independently complete questionnaires related to knowledge, self-efficacy, the importance of specific diabetes knowledge and skills, and behaviors helpful for self-management and transition readiness. Analysis included frequencies, correlations, Cronbach's alpha, and paired t-tests Results: Knowledge was high and self-efficacy even higher in the dyads. However, they did not agree on behaviors important for transition such as, knowing what the HbAic should be, accurately counting carbohydrates, how to check ketones, how alcohol and drugs affect diabetes, or consistent documentation of blood sugar, carbohydrates and insulin doses. Adolescents indicated talking with providers and program materials as helpful, but attending regular visits and talking with parents as most helpful for transition. Adolescent and parent assessment of adolescent self-efficacy and self- management behaviors were strongly correlated. Family dyad's perceptions of adolescent self-efficacy were similar but not related to HbAuc Conclusion: A diabetes transition program has the opportunity to impact an adolescent's ability to self manage their chronic illness by increasing self-efficacy and recognizing the strengths of the parent adolescent and provider in the transition process. 2015 Elsevier Inc. All rights reserved. Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25283
Title : Experiences with and outcomes of two interventions to maximize engagement of chronically ill adolescents during hospital consultation : a mixed methods study Material Type: printed text Authors: Staa, AnneLoes van, Author ; Sattoe, Jane N.T., Author ; Strating, Mathilde M.H., Author Publication Date: 2015 Article on page: p. 757-775 Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 757-775Abstract: Improving patient-provider communication during hospital consultations is advocated to enhance self- management planning and transition readiness of adolescents with chronic conditions. This longitudinal mixed methods study evaluates the implementation and the outcomes ofindependent split-visit consultations and individual transition plans by 22 hospital teams participating in the Dutch Action Program"On Your Own Feet Ahead!". The interventions raised awareness in adolescents and professionals, improved adolescents' display of independent behaviors and led to more discussions about non-medical issues. Successful implementation required ateam-based approach and clearexplanation to parents and adolescents Pediatric nurses played a pivotal role in improving transitional care. 2015 Elsevier Inc. All nghts reserved. Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25284 [article] Experiences with and outcomes of two interventions to maximize engagement of chronically ill adolescents during hospital consultation : a mixed methods study [printed text] / Staa, AnneLoes van, Author ; Sattoe, Jane N.T., Author ; Strating, Mathilde M.H., Author . - 2015 . - p. 757-775.
Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 757-775Abstract: Improving patient-provider communication during hospital consultations is advocated to enhance self- management planning and transition readiness of adolescents with chronic conditions. This longitudinal mixed methods study evaluates the implementation and the outcomes ofindependent split-visit consultations and individual transition plans by 22 hospital teams participating in the Dutch Action Program"On Your Own Feet Ahead!". The interventions raised awareness in adolescents and professionals, improved adolescents' display of independent behaviors and led to more discussions about non-medical issues. Successful implementation required ateam-based approach and clearexplanation to parents and adolescents Pediatric nurses played a pivotal role in improving transitional care. 2015 Elsevier Inc. All nghts reserved. Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25284
Title : Intergrating an EMR-based transition planning tool for CYSHCN at a children's hospital : a quality improvement project to increase provider use and satisfaction Material Type: printed text Authors: Wiemann, Constance M., Author ; Hergenroeder, Albert C., Author ; Bartley, Krystle A., Author Publication Date: 2015 Article on page: p. 776-787 Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 776-787Abstract: An electronic medical record(EMR).based transition planning tool(TPT) designed to facilitate transition from pediatric to adult-based health care for youth(16-25 years) with special health care needs was introduced at a large children's hospital. Activities to increase provider use were implemented in five plan-do-study-act cycles. Overall, 22 of 25(88%) consenting providers in four pediatric subspecialty services used the TPT during 303 patient encounters, with nurses and case- managers the top users and physicians the least likely users. Use was highest with intensive technical assistance and following the introduction of an upgraded tool. Provider satisfaction with the TPT and self-reported transition planning activities notably increased across the PDSA cycles. 2015 Published by Elsevier Inc. Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25286 [article] Intergrating an EMR-based transition planning tool for CYSHCN at a children's hospital : a quality improvement project to increase provider use and satisfaction [printed text] / Wiemann, Constance M., Author ; Hergenroeder, Albert C., Author ; Bartley, Krystle A., Author . - 2015 . - p. 776-787.
Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 776-787Abstract: An electronic medical record(EMR).based transition planning tool(TPT) designed to facilitate transition from pediatric to adult-based health care for youth(16-25 years) with special health care needs was introduced at a large children's hospital. Activities to increase provider use were implemented in five plan-do-study-act cycles. Overall, 22 of 25(88%) consenting providers in four pediatric subspecialty services used the TPT during 303 patient encounters, with nurses and case- managers the top users and physicians the least likely users. Use was highest with intensive technical assistance and following the introduction of an upgraded tool. Provider satisfaction with the TPT and self-reported transition planning activities notably increased across the PDSA cycles. 2015 Published by Elsevier Inc. Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25286
Title : Measuring transition readiness : A correlational study of perception of parent and adolescents and young adults with sickle cell disease Material Type: printed text Authors: Speller-Brown, Barbara, Author ; Kelly, Katherine Patterson, Author ; VanGraafeiland, Brigit, Author Publication Date: 2015 Article on page: p. 788-796 Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 788-796Abstract: Abstract Adolescents and young adults(AYAs often transfer from pediatric to adult care without adequate preparation, resulting in increased morbidity and mortality. The purpose of this descriptive research study of parent/AYA dyads was to measure perceptions of transition readiness. Factors that were found to be associated with perceptions of increased readiness to transition included AYA age, the amount of responsibility AYAs assume for their healthcare and the degree of parent involvement. More attention should be focused on these aspects of care to improve transition from pediatric to adult care for AYAs with sickle cell disease O 2015 Elsevier Inc. All rights reserved. Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25288 [article] Measuring transition readiness : A correlational study of perception of parent and adolescents and young adults with sickle cell disease [printed text] / Speller-Brown, Barbara, Author ; Kelly, Katherine Patterson, Author ; VanGraafeiland, Brigit, Author . - 2015 . - p. 788-796.
Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.30 No.5 (Sep-Oct) 2015 [11/19/2015] . - p. 788-796Abstract: Abstract Adolescents and young adults(AYAs often transfer from pediatric to adult care without adequate preparation, resulting in increased morbidity and mortality. The purpose of this descriptive research study of parent/AYA dyads was to measure perceptions of transition readiness. Factors that were found to be associated with perceptions of increased readiness to transition included AYA age, the amount of responsibility AYAs assume for their healthcare and the degree of parent involvement. More attention should be focused on these aspects of care to improve transition from pediatric to adult care for AYAs with sickle cell disease O 2015 Elsevier Inc. All rights reserved. Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=25288
